A state level programme on World Hemophilia Day was organised by the Hemophilia Society, Shillong Chapter today with support from NEIGRIHMS and Novonordisk, in NEIGRIHMS.
During the progamme, an awareness talk on Hemophilia care in children and Musculoskeletal complications and their management of hemophilia were delivered. Experiences were also shared by hemophilia patients.
Hemophilia is usually an inherited bleeding disorder in which the blood does not clot properly due to low levels of either factor VIII (8) or factor IX (9) causing Hemophilia A or Hemophilia B respectively. Patients may bleed spontaneously or following injuries or surgery. Many cases go undetected in the state due to lack of awareness about this disease.
Health Principle Secretary, Sampath Kumar, Prof (Dr) Prithwis Bhattacharyya, Director, NEIGRIHMS and David T Umdor, Deputy Director (Administration), NEIGRIHMS attended the programme.
WHD is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of the World Federation of Hemophilia.
Since 1989, World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related to proper care to the wider public.